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cathylupus's Journal
Created on 2004-06-24 05:10:39 (#3594270), never updated
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Basic Info| Name: | cathylupus |
|---|---|
| Birthdate: | 07-19 |
| Location: | Illinois, United States |
BioAbout Me
HI,
My name is cathy. Iam 37 years old. I have had symptoms of systemic lupus since 1980;s. I was finally diagnosed in 1996. After 3 miscarriages i did finally have 2 children .I did not know of the lupus then nor did my dr;s.In 1994 I started having alot of fevers, joint pain,rashes, raynuads, hives. so i went to dr . they treated me just with ibuprofen & sent me on my way. Finally in 1996 i got someone to take me seriously & i was diagnosed with lupus. In 1999 my lupus was active so I started on plaquenil, pred & immuran . methotrexate that year. In july 2000 i started having odd neurological problems. i developed optic neuritis in my left eye, severe spastic muscles in my arms & legs .having difficulty walking nor standing. Up till this point i had been exercising & walking 1 hr a day. Once that started my life hasn;t been the same since.In the years 2001 I tried to find out what was causing these problems but alot of unknowns & not very knowledgable dr;s.After that I did not go to dr;s till 2003.In 2003 I got a new primary & things started to go different. He got me into see a new rheumatologist, neurologist & finally now in 2004 a neuro-opthamologist.The neuro-opthamologist discovered taht i have bilateral optic neuritis, myoclonus, cns lupus/MS , vaculitis, & antiphospholid syndrome.So finally after all this time a name to the weird odd things...
HI,
My name is cathy. Iam 37 years old. I have had symptoms of systemic lupus since 1980;s. I was finally diagnosed in 1996. After 3 miscarriages i did finally have 2 children .I did not know of the lupus then nor did my dr;s.In 1994 I started having alot of fevers, joint pain,rashes, raynuads, hives. so i went to dr . they treated me just with ibuprofen & sent me on my way. Finally in 1996 i got someone to take me seriously & i was diagnosed with lupus. In 1999 my lupus was active so I started on plaquenil, pred & immuran . methotrexate that year. In july 2000 i started having odd neurological problems. i developed optic neuritis in my left eye, severe spastic muscles in my arms & legs .having difficulty walking nor standing. Up till this point i had been exercising & walking 1 hr a day. Once that started my life hasn;t been the same since.In the years 2001 I tried to find out what was causing these problems but alot of unknowns & not very knowledgable dr;s.After that I did not go to dr;s till 2003.In 2003 I got a new primary & things started to go different. He got me into see a new rheumatologist, neurologist & finally now in 2004 a neuro-opthamologist.The neuro-opthamologist discovered taht i have bilateral optic neuritis, myoclonus, cns lupus/MS , vaculitis, & antiphospholid syndrome.So finally after all this time a name to the weird odd things...
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